Not very routine.

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The last time is saw my neurologist was 2018 and I was supposed to have annual appointments so he could monitor how my symptoms have developed. However due to COVID seeing DR's was getting very difficult, so after constantly leaving requests for appointments with Dr Hayton's secretary and getting nowhere, I went to my GP in November 2021 and got them to refer me.

I wasn't expecting an appointment straight away but defiantly within 3 months. No, when it finally came through in August 2022 it was for the 13/01/23 so it would have been 5 years since I was last seen. Since then I had started using a walking stick daily, due to may small falls or twists to my knee I had developed a bakers cyst behind my right knee and I needed to chase up my speech therapist referral.

I continued to wait for my appointment but then on 28th December 2022 I received a letter advising it had been change from 13/01/23 to 13/12/23. I think it was the fact I had waited so long, my bakers cyst had ruptured or the fact I was just so angry that they thought postponing my appointment for a further 11 months was acceptable but when I read the letter I just went to bed at 1pm and cried until Zaynah and mom got home.

My thoughts, after I had got all the disappointment out my system, was to contact the hospital booking department. Instead of phoning them I emailed because I was still upset and would have ended up just crying or shouting.

I explained everything, how long I have waited, my declining health etc and they moved my appointment to 13/02/23. Now I'm not sure why they couldn't have just given me that date in the first place.

At the end of November, I got a phone call from Dr Hayton's office confirming my upcoming appointment in December. I was baffled because I saw the Dr in February but as I didn't know when it my next routine appointment will be I confirmed.  Also a lot had change health wise, and I wanted to follow up on things, such as physio and speech referrals. I had gone from walking with two sticks to using a wheelchair.

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